The ABC landscape
The ABC map is an interactive tool that provides a snapshot of the key insights into ABC from across Europe garnered from the campaign’s research.
Simply select the information you wish to view on the interactive key below to uncover key data specific to each country. A document summarising the results of the survey can also be downloaded here.
The healthcare professional survey
The Here & Now Healthcare Professional (HCP) survey identified that HCPs feel that ABC impacts their patients’ emotional wellbeing, yet as professionals they do not receive formal training or support to help them manage the psychological and emotional needs of patients.
The survey also revealed that many clinicians felt that their patients didn’t fully understand their diagnosis highlighting the need for increased support and guidance for women with ABC. In addition, clinicians and nurses across Europe felt that a multidisciplinary team approach to treating patients with ABC improves the level of care for these women – a feeling which was echoed at the ABC roundtable meeting.
As part of the ABC roundtable meeting attendees agreed to support the development of ‘patient navigators’ in the absence of clinical nurse specialists, who could provide personal guidance to patients as they move through the healthcare system, ideally within oncology multidisciplinary teams.
As a result of these findings the Here & Now campaign will be developing a training resource to support HCPs across Europe in communicating with, and supporting their patients, throughout their ABC journey. The resource has been designed to provide guidance on how to approach a number of topics including communicating diagnosis and prognosis clearly, managing stress and palliative care.
% of ABC patients and carers who have experienced anxiety or depression
% decrease in time spent dedicated to housework of ABC patients following an ABC diagnosis
% of ABC patients who believe they are perceived negatively by society
% of ABC patients and carers surveyed who have experienced a decline in their household income due to an ABC diagnosis
% of ABC patients and carers who are spending more on further medication since the patient’s disease progressed
% of women living with ABC who have received support from patient groups following an ABC diagnosis
% of public surveyed who did not know how to correctly define ABC
% of nurses and clinicians that think that their ABC patients do not fully understand their diagnosis
% of nurses and clinicians that agree that a multidisciplinary team approach improves the level of care for patients with ABC
% of clinicians and nurses agree that treating patients with ABC impacts them emotionally
* Due to survey design, respondents were required to choose a percentage range
- Insight Research Group. Here & Now European patient and carer survey (2013). London: Insight Research Group
- Public survey, One Poll, sponsored by Novartis Oncology (2013)
- Healthcare professional survey, Synergy Research Group, sponsored by Novartis Oncology (2014)